Our little fighter amazes me every day! How strong and very brave he is. His strength is what keeps us going and fighting strong. Hunter was diagnosed with ALL Leukemia on March 29Th 2010. We are in our maintenance right now for the next three years. Now that he has no immune system and here comes winter my fears has set in! All last year both of our boys had the croup scared to death to see what this winter will bring us.
Total Pageviews
Wednesday, August 28, 2013
Monday, August 20, 2012
Photos from July..............
Thursday, August 16, 2012
July treatment done.............
Every one is in bed for a little while and yes I need the rest, but if you know someone who has chemo they don't sleep. Up and down all night long. I have been dragging my feet to write about this months treatment. This July Hunter had a treatment on the 3rd and four weeks later on the 31st. This time it broke me, broke into pieces that I am still having a hard time trying to put back together. It is very hard to put my poker face on lately. As I carried Hunter out of same day surgery he was crying and I was crying hysterically down the hall to Rick. I was shouting to him," I am done.... I am so DONE.... I can not do this any more." As I looked at Rick and our oldest son Triston walking toward them with this look of shock on their faces. They were both frozen staring at me. The day Hunter was diagnosed with Leukemia nurses have been holding him down for peg shots (this is chemo shots in both legs at the same time) or to get him accessed. Hunter was two years and four months old when we were told he had cancer. I have kept everything the same routine each time we have went to Primary Children's. Hunter only knows the routine just now almost five he has been able to say,"I don't want to be accessed." or " I don't want chemo." Routine is all he knows. I had a nurse ask me once," does he know what you are talking about?" I told her, "no but he knows what is going to happen to him because I am telling him and at that moment he will know. To have Hunter accessed I have trained him to keep his hands above his head keep his leg straight. Squeeze mommies hands and as I whisper in his ears It's OK I am right here. Your mommies is right here. Hold still keep your leg straight. They are almost done. I will repeat this to him over and over again. So Hunter will not have to be held down by three or four people. The reason we are at same day surgery is they did not have Hunter scheduled for R.T.U. this trip was two doses of chemo one through his port and the other through his spine. I had his appointment all made but some how it was not scheduled. We went to clinic and got his Vanchristien through his port. Things were fine we made our way down to same day surgery. Talked to the nurse told her that he will not keep his wrist band on and she said, "we can make a sticker to put on him." I told her OK put he is allergic to any adhesive on his skin. After Hunter is access they have to use a wound bandage to cover his port. I told her she could put it on his band aid over his port. she said,"OK" and made some notes on his chart. Then the anesthesiologist came in Hunter has had him before at R.T.U. This was familiar to Hunter so we started on our way. Very nice man Hunter really liked him. They wheeled a bed right out the side of the doors. Before they wheeled Hunter back they were going to put him to sleep in the hall way with me holding him. The anesthesiologist lifted Hunter into the bed and went to give him the medicine to put him to sleep. When this happens right before Hunter is put to sleep he will grab hold of me so very tight until he is limp and as I lay him in the bed I will whisper in his ear," Mommy is right here Baby, I'll be right here." But this time as they were giving his medicine Hunter started screaming. When the anesthesiologist lifted Hunter in bed he had De accessed him. When they gave Hunter his medicine instead of going in his port it went just below the skin surface. I have been told this is very painful and this is not the first time this has happen. Hunter is screaming out in the hall way and everyone is coming out of the wood work to see what is going on. Now another anesthesiologist has come out to help get Hunter accessed and he is so swollen and they can not get him accessed. They poked and prodded on him for about 10 minutes I was getting very angry at this point and time and told them to call up to clinic for someone to come down to get Hunter accessed. They took us out of the hall way and put us in a room. I got Hunter calmed down just in time for the nurse to come in and access him. While Hunter is getting accessed I found out that Hunter is getting his spinal done by a practitioner. The same gal that came in our room at the clinic and did not sanitise her hands ( I did not let her touch Hunter at clinic) Now she is going to do his spinal. I have reached the boiling point. I made it CRYSTAL clear to Dr.Lemons I do not want anyone practicing on Hunter. I do understand they all have to practices but not on our son. Our first two weeks to Primary Children we all most lost Hunter twice do to medical mistakes by practitioners practicing. I also made it clear to the fill in Doctor at clinic about not having a practitioner for his spinal. Obviously my voice was not heard. They do listen to me but do what they want. As they are wheeling him back and I am telling them to not put him back by any one who is sick because I know a lot of kids have died from germs. Now waiting for Hunter to get done as I go back and he is screaming for me as I try to calm him down Hunter and he is screaming "you leave me, you leave me !!" As I am trying to comfort him I notice he is still accessed asked why? As they started to take his band aid off I noticed that as soon as they took Hunter back they took off his band aid covering his port and Terrie strip it down about six times. I all so noticed they put the sticker right above his port the same sticker I told them he is allergic to. As the Anesthesiologist is taking the Terrie strips off he DE accessed Hunter and then he remember he forgot to but in the heparin in. So now Hunter has to be accessed again. So they called the same girl down from clinic to re access him she brings another nurse with her. By this time Hunter is very swollen and three other nurses come in ready to jump on Hunter to hold him down. My tone is not the best by now so I am tell them all to back off and let me talk to Hunter. While they are poking on I am telling Hunter it's OK and they keep trying to access him but they can not. The other nurse steps in to try I asked her why, you have never access Hunter before? She told me she has and the first nurse said,"I don't want to poke him again." I told her NO. you have not she proceeded to argue with me I told her unless you work at Dixie Regional then you have never access him. She looks at me and said,"That right he is access in St.George." They used a 22 gage needle and now Hunter is to swollen they have to get a bigger needle. Finely after poking and prodding again for another 10 minutes Hunter is accessed by the first nurse. They give him his heparin and DE access him Hunter is crying uncontrollably by now. Then I tell them all in a not so nice tone I am not trying to be a Witch but you have tortured my son and I let you do this and it will never happen again. I picked Hunter up in my arms left. This show's you how very week I am. At first when Hunter was diagnosed I prayed that our father in heaven would take him so he would not have to suffer. Now his strength and courage keeps Hunter still fighting strong. I do know that wounds heel in time and time is all we have for now. I do believe things happen for a reason. Rick and I both believe that Hunter is here for a cure. We believe in miracle's........do you?
Thank you for keeping us in your thoughts and prayers. Love,The Laubs
Thank you for keeping us in your thoughts and prayers. Love,The Laubs
Friday, July 13, 2012
Treatment for July.......
This trip we had to take Triston to the Doctor in Salt Lake City to see a pulmonary specialist. This all started with Triston and Hunter both having the croup from November 2009 to February 2010. This was every month or twice a month. February 19Th 2010 we had both of the boys tonsils taken out on the same day. This was to take care of the croup. But we still keep getting the croup. Both of our boys have been on steroids every month this last year. Let's talk about stress..... A normal immune system anything that goes around your kid would catch it with in three days. A child with no immune system catches things in a day. Triston would get the croup to the point of him shutting down his breathing and he is almost blue and he is ripping off his shirt to breath. After getting him back to breathing again later we wait for Hunter to start running a fever and pray that we can catch it in time so Hunter is not admitted in the hospital. But this would not happen. So I would be in a panic waiting for it to happen to Hunter and hold my breath for the next couple of days. Then I would let down my guard because Hunter would not get it. But some thing inside my heart would taunt me because Hunter should have got this virus.Why didn't get it? This has been bothering me for a year now. A little voice inside my head is tell me something was not right. Now that Triston is six years old and 4'3 his weight is double the size of what a six year old should be. Now
Monday, May 28, 2012
Hunter lost his first tooth !!!!
When Hunter was diagnosed with leukemia we would hear about others and how they didn't make it in this battle. I never thought that we would be able to see him grow up right before our eyes. He lost his very first tooth !!! And of corse this momma cryed. So very blessed we are. Thank you all for keeping us in your thoughs and prayers. Love the Laub's
Friday, May 11, 2012
Treatment for May.......
![]() |
| Found a new Friend on our way to R.T.U. his name is Reggie. |
![]() |
| Oliver is still our favorite !!! |
![]() |
| Just a little wet. |
![]() |
| Making wishes and hoping they will come true. |
Monday, February 20, 2012
Happy Valentines Day......
We drove up Monday 13Th, that night to Salt Lake on our way up we get a call from Uncle Kevin he told us that on the news they were taking about a shortage of chemo and was wondering if this would effect Hunter? I had not heard about this shortage so I was not sure. Hunter was to have two doses of chemo this trip. I didn't think they would have to put him under for R.T.U. because Hunter got the croup Tuesday a week before. So we had him still fast to see what the Doctor had to say. We are at clinic and I had brought some Valentines for the other kids from Hunter (who doesn't like fun dip,right) While Hunter was making a Valentine we got called back fast, clinic was slow that day. Dr.Lemons came in the room and the first thing he talked about was the shortage. I know I was looking at him like a deer caught in the head lights. It's a feeling that hits you straight in your heart and your heart just sinks. I am overwhelm with fear and very scared. It's true and this is going to effect him how? We will not know how this will effect him until it happens. We have been told that if Hunter just stops his treatments today he would be fine for a while but he would relapse and not be so lucky as to have ALL leukemia. It would could back very aggressive into an other leukemia. He would have to have a bone marrow transplant too. I remember the first time we had went up to Primaries Children's and the nurse we had told us when we found out Hunter had ALL Leukemia he said,"this is the one you would hope for." A flood of memories just came rushing over me. Memories that have forever been burned into my sole. Just the right key of words can open my wall that I have built so strong and tall. Now we are back to picking up the pieces and hoping and praying that none of these kids have to go with out this poison that is keeping them all alive and here with us. Hunter did have chemo in his spine this trip but in three months when he is due for it again they are not for sure if it will be available. So a not so Happy Valentines Day but a unforgetable. But you all can help in our fight by send this letter and make those phone call's. Help all of us in our fights.Thank you all for keeping us in your thoughts and prayers. Love The Laubs CureSearch for Children's Cancer
YOU CAN HELP IN TWO WAYS
Contact the following pharmaceutical companies who produce methotrexate and ask them to:
- Prioritize the production of the preservative-free form of methotrexate.
- Consider working with the FDA to import preservative-free methotrexate if sources are available.
| APP Customer Service | 1-888-386-1300 |
| Hospira, Inc. Customer Service | 1-877-946-7747 |
| Mylan Institutional | 1-888-258-4199 |
| Sandoz Customer Service | 1-609-627-8500 |
Second, contact your Representatives and Senators on Capitol Hill and ask them to immediately send a letter to these same pharmaceutical companies requesting that they:
- Prioritize the production of the preservative-free form of methotrexate.
- Consider working with the FDA to import preservative-free methotrexate if sources are available.
To send a letter to your representative, click here.
Thank you for your support of this important issue!
Thursday, February 16, 2012
Happy Birthday Triston !!!
![]() |
| CAKE FIGHT!!!! |
![]() |
| Thank you for sharing your day with Hunter. |
![]() |
| What was left !!! |
Friday, January 27, 2012
Treatment for December and January.........
![]() |
| Hunter LOVES visit from Oliver !!! |
![]() |
| Hunter making snow angles. |
![]() |
| Our little polar bears. |
Friday, December 2, 2011
Happy Birthday Hunter !!!
| Hunter won the Birthday cake from KONY !!!! |
| Birthday cards from the Schmitt family,Thank you !!! |
| What was left. |
Friday, October 7, 2011
Loosing grandpa Harvey and a treatment for August.......
![]() |
Loosing grandpa Harvey is a great loss in our family. Our boys still talk about him today and I hope they never forget him. This was a loss that didn't have to happen. He will truly be missed. We were very blessed to have spent his last days with him. It was an honer to be with him. As young as our boys are I hope these memories stay with them for the rest of their lives. Triston and Hunter both have grandpa's crooked little smile and Triston has his hands. Little reminders that will help us to never forget him so very grateful for reminders. I told the boys in there questions about grandpa, why and what was happening to him that grandpa was going to help be their guarding angle. To watch over them both and to keep them safe and we will see him again some day.
I told them that the brightest star in the sky they will see at night will be grandpa watching over them. When we least expect it and running out the door at night or when we are coming home in the evening and the stars are shining so very bright the boys will shout out,"we miss you grandpa Harvey !!!" Rick and I both look at each other and just smile. If we have learned anything in our journey with fighting cancer is life is to short and your life is what you make of it. We will never know how long we all have but I hope that when that time comes, I can be remembered with a smile on my family's face. Harvey was a tell you like it is kind of a man. You might not have like the answer he gave you but it was the truth straight from his mouth. He treated me just like is own. I am very grateful for that. He will be missed but never forgotten. We buried grandpa and a week later we left to go for Hunter's treatment.
So we went to have Hunter accessed here in town and I saw that it wasn't the right bandage for him. I asked the nurse and she said,"I looked in his charted and this is the one." I asked again and told her that it is brown. And Child life was in there and she agreed with me. She said,"she is right it is brown." This nurse insisted that it was the right band aid and I believed her. I should have listen to my gut. "I know better then this." So we leave for Primaries and this time it is RTU. We go up stairs to do more blood work and as they put in the saline and Hunter started to cry and grabbed his chest. My heart just sank, I was sick, Hunter de-accessed him self. This means that Hunter can not be numbed again because the spray burns him worse then the band aids. So now that he is re accesses we are heading down stairs to RTU. We had to wait for an hour and a half. Mom is still kicking my self for this. Now it is our turn and we get into RTU and the anesthesiology just pushes in the meds into his port. He always grabs me so tightly before he falls asleep but not this time Hunter stared to cry, yes Hunter has de-accessed him self again. Now Hunter is very swollen and they have to re access him and it is not working so they have to pick the needle up and down at least five or six times to try to get it in. They can not get Hunter accessed. By this time Hunter is hysterical. The anesthesiology had to order him some liquid Versed to clam him down. They had to shoot this up in his nose with a nurse on each side of him. It took six adults to hold him down through all of this. Now they had to call a nurse from up stairs to RTU to access Hunter. This worked (yeah) now they can give him his chemo. As I walked outside to wait for Hunter I lost it. I felt so guilty I should have listen to my gut. I think the hardest part is knowing what all Hunter has to go through and I could have prevented this. Waiting for Hunter The Doctor came out to tell me that she had missed in his spine so he will have two pokes in his back. They think he will be a little while waking up from all the meds and how sorry she was (which made me cry more) so they will see me up stair when he wakes up. Two minutes later Hunter woke up screaming to get away from him. So I went back he wanted out of there,he wanted his dad and he wanted to go home. I told him we had to go up stairs he stared to cry this broke my heart even more. We get up stairs and we run into Sherry and Oliver this always makes Hunter's day (not today!) had to apologize to her for Hunter. Hunter is so done this trip,he has had enough this time. He didn't even want to make his wish outside this time. The next day I had to call Primaries because Hunter was not eating anything and he is on a high dose of dexamethasone, six tablets twice a day and I had to ask them about a rash he was starting to get on his face. I was told that if it get worse then bring him in. We got ready to head home arrived just in St.George just before 9:30pm to go to Red Rock pediatrics to have Hunter checked out because now his rash is all over his face and he is itchy. Hunter had an allergic reaction to the versed they shot up his noise. We never got home until after 11:00pm. We unpacked and went to bed. I got up early to get things done before I had to be to work and Hunter started throwing up every where. Hunter was screaming and saying," my head is hurting!" I thought he was having an aneurysm but come to find out when they missed on his spinal it caused him to leak spinal fluid so Hunter was having migraine head aches. Hunter had to be put back on Oxycontin and Zofran to help with his head ache and to stop him from throwing up. This lasted for a week and a half. Our blog is late we made it through another treatment. Thank you for keeping us in your thoughts and prayers. Love,The Laub's
Tuesday, June 14, 2011
Needing some prayers our way !!!
First I do have to apologies for not posting sooner !!! I promise to show and tell every detail on Hunter's Make-a-wish trip soon !! While we were in Florida Hunter's grandpa was admitted in the rest home for cellulitis infection. Grandma was watching our boy's while Daddy and Mommy works and brought home the Rhino flu from visiting grandpa. Hunter got it the next day because of his immune system. Then Daddy,Triston and yes,even grandma got it too. Daddy and Triston had to be checked out and two day's later Triston came home with the croup. While we were up to Primaries for treatment last Tuesday they did not do Hunter's RTU because he has been sick. We were Quentin to our room on this trip. Now last night back again to the hospital for fever now throwing up. Got home about 4:00am and this morning and another fever at 8:00am we will be going back later today for more antibiotic through his port. So Hunter has the Rhino flu with croup that keeps hanging on and now throwing up with fever. This has been a ROUGH FOUR WEEKS. This mommy is asking please,for some prayers to be sent his way !!! Thank you for keeping us in your thoughts and prayers !! Love,The Laub's
Tuesday, April 26, 2011
Hunter's Test Came Back NEGATIVE !!!!!
We got Hunter's test results and they came back negative. We are so happy so it looks like we are going to get to go to Disney World... ( Look out Florida here we come). I'm so sorry I haven't written on here sooner but it has been a little crazy with making sure Hunter's tests are good and trying to pack for Florida. I'm a little nervous about the plane ride but the boys are looking forward to ridding on a BIG plane, Mom and Dad not so much. The boys are so excited to see WOODY and BUZZ, and let's not forget MICKEY and MINNIE. I will let you all know how the trip goes. Looking forward to some fun time with the boys. I will have a ton of pictures to share with everyone. Thank you for keeping us in your thoughts and prayers !!!! Love the Laub's
Friday, April 22, 2011
April's treatment done.
Had Hunter accessed at Dixie,( THANK YOU LADIES !!!!) headed up to Salt Lake City for treatment had lots to do this trip. Hunter appointment was at 10:00am and on our way up to clinic we had our FAVORITE visitor.... Sherry and Oliver !!!!! They road the elevator with us. Thank you Sherry and Oliver for making Hunter smile !!! Thinking this was going to be a fast trip, I was wrong. Talked to doctor, talked to the nurse. Now we are just waiting for chemo. Then the doctor came back in told me to sit down. She showed me a copy of Hunter blood counts his red blood cell was low it was 2.42. She told me that she has seen this before in kids at the clinic. This is a good chance that Hunter has Human Parvovirus. This virus attacks the bone marrow so he is going to need antibodies to help him. They will do a blood test for the Human Parvovirus and results might be back on Friday if not on Monday. We will have to do another blood test on Monday to see what Hunter counts will be. I am sorry but you are going to hear me VENT..... if they think that Hunter has Human Parvovirus why would they want to put him back in Infusion for a blood transfusion so all the other kids could get the same virus????? This is what bothers me the most about clinic !!!!! If I knew my child was sick I WOULD NEVER LET HIM GO BACK TO INFUSION !!!! So this is why I made Hunter stay in his room the hole eight hours and a twenty minutes we were in clinic. (HUNTER MOMMY IS SO SO SORRY) While Hunter was getting his blood transfusion this brought back more memories from when Hunter was first admitted. It was right after Hunter had his port put in his chest and later the next evening the nurse was giving him blood. Now Rick and I would only sleep maybe two or three hours a night at Primaries. I was watching the monitors and Hunter heart rate would ALWAYS be in the 100's or 90's. this night it was dropping and it got in the 60's so I went out to the nurses station and told our nurse about the monitor and she told me that his heart didn't have to work as hard because he was getting blood now. I believed her and went back in our room. About an hour and a haft passed by and then all the bells and whistles started going off. Our nurse came running in and Hunter heart rate had dropped down to 39. This almost put him into cardiac arrest. They ordered a EKG for Hunter and by morning had three cardiologist talking with Dr.Lemons about repositioning Hunter port. After several hours later what had happen to Hunter was the nurse had administered his blood to fast. So this time while Hunter was getting blood they administered it slow. Mom is TERRIFIED and Hunter was NOT his happy self !! By 6:00pm he had the biggest melt down in clinic. (Sorry to the one family in the back) Our nurse even offered him a prize and Hunter was telling her," no he has toys at home." So down stairs we go to get Daddy and Triston to make our wishes. Triston and Daddy made wishes all after noon waiting for us up stairs.My lot to do will half to wait until tomorrow. Thank you for keeping us in your thoughts and prayers !!! Love, The Laubs
Tuesday, March 22, 2011
Hunter's treatment done for March
![]() |
| Mr. Growly Guss |
![]() |
| He HATES this part. |
![]() |
| Catch !!! |
![]() |
| WEEEEEE !!! |
I do have to APOLOGIES for not posting sooner. We both work full time and I try to HELP with our farm.(SORRY,HONEY) I need at least three more hours in the day and hope that will be enough!!! Hunter had his lumbar puncher this trip. We have Hunter accessed here in town. "THANK YOU HEATHER!!!!" For making Hunter smile,WE LUV YA!!!! When we got up to clinic chemo was not ready it should have been in by 9:00am but wasn't. Hunter appointment 8:00am at clinic and at 9:30am at RTU so down stairs we went. As we got Hunter registered for RTU the lady asked Hunter if he would like a teddy bear that someone had donated. Hunter Said yes !!! He named his bear Growly Guss bear,he loves him. He took his bear to RTU with him and told them all his name and showed them how he Growls. While we were waiting for Dr.Spraker to do his lumbar puncher Hunter was playing with them at RTU with an imaginary ball. THANK YOU ALL at the RTU for making Hunter smile !!!! On our trips I try to do something fun so he will remember all the fun he has had instead of the chemo and all that comes with it. Now back up stairs for more chemo. I always order Hunter a cupcake after RTU. As we got up stairs I try not to let Hunter venture out much. Our second week after Hunter was diagnosed he picked up a bug that is only in Hospital's in infusions so I am PETRIFIED to take him in back. But we survived !!!! Our favorite visitor came in to see us Oliver!!! (THANK YOU SHERRY!!!!) Now outside to see Daddy and Triston to make our wishes. Mom is still wishing for a cure !! We save the best part for last...... on our way home we picked up a new puppy. Her name is Snickers,and the boy's are so EXCITED !!!! Thank you for keeping us in your thoughts and prayers!!! Love, The Laub's
Subscribe to:
Posts (Atom)





















































