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Friday, December 2, 2011

Happy Birthday Hunter !!!

Hunter won the Birthday cake from KONY !!!!

Birthday cards from the Schmitt family,Thank you !!!

What was left.
Hunter turns 4 (HAPPY BIRTHDAY, BIRTHDAY BOY !!!) and winter is finally here because both of our boy's have the crop. We didn't have much of a party for Hunter because he was sick and TWO boy's on STERIODS just was not happy birthday party but..... unforgettable! But as tradition will show you all he enjoyed his birthday. We had a R.T.U. appointment this treatment and it was canceled because of him having the crop. It worries me so because this chemo is measured by age and now it will go up. So are next trip will be right before Christmas. Everything Hunter has to go through and still he has a smile on his adorable little face. We love you Hunter !!! Our life is a lot CRAZY right now. My blogs are not up to date like they should be,"I do have to apologize to you all."  November was a challenge my mother in law who has alzheimer's had a small stroke, Hunter birthday and at the same time both of our boy's having the crop, and our 17Th Anniversary. HAPPY ANNIVERSARY HONEY !!!! I DO LOVE YOU !!! But things could be worse "a lot worse! " So Happy Belated Thanksgiving we hope that Lot's of memories were made. Thank you for keeping us in your thoughts and prays. Love the Laub's

Friday, October 7, 2011

Loosing grandpa Harvey and a treatment for August.......

Loosing grandpa Harvey is a great loss in our family. Our boys still talk about him today and I hope they never forget him. This was a loss that didn't have to happen. He will truly be missed. We were very blessed to have spent his last days with him. It was an honer to be with him. As young as our boys are I hope these memories stay with them for the rest of their lives. Triston and Hunter both have grandpa's crooked little smile and Triston has his hands. Little reminders that will help us to never forget him so very grateful for reminders. I told the boys in there questions about grandpa, why and what was happening to him that grandpa was going to help be their guarding angle. To watch over them both and to keep them safe and we will see him again some day.

I told them that the brightest star in the sky they will see at night will be grandpa watching over them. When we least expect it and running out the door at night or when we are coming home in the evening and the stars are shining so very bright the boys will shout out,"we miss you grandpa Harvey !!!" Rick and I both look at each other and just smile. If we have learned anything in our journey with fighting cancer is life is to short and your life is what you make of it. We will never know how long we all have but I hope that when that time comes, I can be remembered with a smile on my family's face. Harvey was a tell you like it is kind of a man. You might not have like the answer he gave you but it was the truth straight from his mouth. He treated me just like is own. I am very grateful for that. He will be missed but never forgotten. We buried grandpa and a week later we left to go for Hunter's treatment.

So we went to have Hunter accessed here in town and I saw that it wasn't the right bandage for him. I asked the nurse and she said,"I looked in his charted and this is the one." I asked again and told her that it is brown. And Child life was in there and she agreed with me. She said,"she is right it is brown." This nurse insisted that it was the right band aid and I believed her. I should have listen to my gut. "I know better then this." So we leave for Primaries and this time it is RTU. We go up stairs to do more blood work and as they put in the saline and Hunter started to cry and grabbed his chest. My heart just sank, I was sick, Hunter de-accessed him self. This means that Hunter can not be numbed again because the spray burns him worse then the band aids. So now that he is re accesses we are heading down stairs to RTU. We had to wait for an hour and a half. Mom is still kicking my self for this. Now it is our turn and we get into RTU and the anesthesiology just pushes in the meds into his port. He always grabs me so tightly before he falls asleep but not this time Hunter stared to cry, yes Hunter has de-accessed him self again. Now Hunter is very swollen and they have to re access him and it is not working so they have to pick the needle up and down at least five or six times to try to get it in. They can not get Hunter accessed. By this time Hunter is hysterical. The anesthesiology had to order him some liquid Versed to clam him down. They had to shoot this up in his nose with a nurse on each side of him. It took six adults to hold him down through all of this. Now they had to call a nurse from up stairs to RTU to access Hunter. This worked (yeah) now they can give him his chemo. As I walked outside to wait for Hunter I lost it. I felt so guilty I should have listen to my gut. I think the hardest part is knowing what all Hunter has to go through and I could have prevented this. Waiting for Hunter The Doctor came out to tell me that she had missed in his spine so he will have two pokes in his back. They think he will be a little while waking up from all the meds and how sorry she was (which made me cry more) so they will see me up stair when he wakes up. Two minutes later Hunter woke up screaming to get away from him. So I went back he wanted out of there,he wanted his dad and he wanted to go home. I told him we had to go up stairs he stared to cry this broke my heart even more. We get up stairs and we run into Sherry and Oliver this always makes Hunter's day (not today!) had to apologize to her for Hunter. Hunter is so done this trip,he has had enough this time. He didn't even want to make his wish outside this time. The next day I had to call Primaries because Hunter was not eating anything and he is on a high dose of dexamethasone, six tablets twice a day and I had to ask them about a rash he was starting to get on his face. I was told that if it get worse then bring him in. We got ready to head home arrived just in St.George just before 9:30pm to go to Red Rock pediatrics to have Hunter checked out because now his rash is all over his face and he is itchy. Hunter had an allergic reaction to the versed they shot up his noise. We never got home until after 11:00pm. We unpacked and went to bed. I got up early to get things done before I had to be to work and Hunter started throwing up every where. Hunter was screaming and saying," my head is hurting!" I thought he was having an aneurysm but come to find out when they missed on his spinal it caused him to leak spinal fluid so Hunter was having migraine head aches. Hunter had to be put back on Oxycontin and Zofran to help with his head ache and to stop him from throwing up. This lasted for a week and a half. Our blog is late we made it through another treatment. Thank you for keeping us in your thoughts and prayers. Love,The Laub's

Tuesday, June 14, 2011

Needing some prayers our way !!!

First I do have to apologies for not posting sooner !!! I promise to show and tell every detail on Hunter's Make-a-wish trip soon !! While we were in Florida Hunter's grandpa was admitted in the rest home for cellulitis infection. Grandma was watching our boy's while Daddy and Mommy works and brought home the Rhino flu from visiting grandpa. Hunter got it the next day because of his immune system. Then Daddy,Triston and yes,even grandma got it too. Daddy and Triston had to be checked out and two day's later Triston came home with the croup. While we were up to Primaries for treatment last Tuesday they did not do Hunter's RTU because he has been sick. We were Quentin to our room on this trip. Now last night back again to the hospital for fever now throwing up. Got home about 4:00am and this morning and another fever at 8:00am we will be going back later today for more antibiotic through his port. So Hunter has the Rhino flu with croup that keeps hanging on and now throwing up with fever. This has been a ROUGH FOUR WEEKS. This mommy is asking please,for some prayers to be sent his way !!! Thank you for keeping us in your thoughts and prayers !! Love,The Laub's

Tuesday, April 26, 2011

Hunter's Test Came Back NEGATIVE !!!!!

We got Hunter's test results and they came back negative. We are so happy so it looks like we are going to get to go to Disney World... ( Look out Florida here we come). I'm so sorry I haven't written on here sooner but it has been a little crazy with making sure Hunter's tests are good and trying to pack for Florida.  I'm a little nervous about the plane ride but the boys are looking forward to ridding on a BIG plane, Mom and Dad not so much. The boys are so excited to see WOODY and BUZZ, and let's not forget MICKEY and MINNIE. I will let you all know how the trip goes.  Looking forward to some fun time with the boys. I will have a ton of pictures to share with everyone. Thank you for keeping us in your thoughts and prayers !!!! Love the Laub's

Friday, April 22, 2011

April's treatment done.

Had Hunter accessed at Dixie,( THANK YOU LADIES !!!!) headed up to Salt Lake City for treatment had lots to do this trip. Hunter appointment was at 10:00am and on our way up to clinic we had our FAVORITE visitor.... Sherry and Oliver !!!!! They road the elevator with us. Thank you Sherry and Oliver for making Hunter smile !!! Thinking this was going to be a fast trip, I was wrong. Talked to doctor, talked to the nurse. Now we are just waiting for chemo. Then the doctor came back in told me to sit down. She showed me a copy of Hunter blood counts his red blood cell was low it was 2.42. She told me that she has seen this before in kids at the clinic. This is a good chance that Hunter has Human Parvovirus. This virus attacks the bone marrow so he is going to need antibodies to help him. They will do a blood test for the Human Parvovirus and results might be back on Friday if not on Monday. We will have to do another blood test on Monday to see what Hunter counts will be. I am sorry but you are going to hear me VENT..... if they think that Hunter has Human Parvovirus why would they want to put him back in Infusion for a blood transfusion so all the other kids could get the same virus????? This is what bothers me the most about clinic !!!!! If I knew my child was sick I WOULD NEVER LET HIM GO BACK TO INFUSION !!!! So this is why I made Hunter stay in his room the hole eight hours and a twenty minutes we were in clinic. (HUNTER MOMMY IS SO SO SORRY) While Hunter was getting his blood transfusion this brought back more memories from when Hunter was first admitted. It was right after Hunter had his port put in his chest and later the next evening the nurse was giving him blood. Now Rick and I would only sleep maybe two or three hours a night at Primaries. I was watching the monitors and Hunter heart rate would ALWAYS be in the 100's or 90's. this night it was dropping and it got in the 60's so I went out to the nurses station and told our nurse about the monitor and she told me that his heart didn't have to work as hard because he was getting blood now. I believed her and went back in our room. About an hour and a haft passed by and then all the bells and whistles started going off. Our nurse came running in and Hunter heart rate had dropped down to 39. This almost put him into cardiac arrest. They ordered a EKG for Hunter and by morning had three cardiologist talking with Dr.Lemons about repositioning Hunter port. After several hours later what had happen to Hunter was the nurse had administered his blood to fast. So this time while Hunter was getting blood they administered it slow.  Mom is TERRIFIED and Hunter was NOT his happy self !! By 6:00pm he had the biggest melt down in clinic. (Sorry to the one family in the back) Our nurse even offered him a prize and Hunter was telling her," no he has toys at home." So down stairs we go to get Daddy and Triston to make our wishes. Triston and Daddy made wishes all after noon waiting for us up stairs.My lot to do will half to wait until tomorrow. Thank you for keeping us in your thoughts and prayers !!! Love, The Laubs

Tuesday, March 22, 2011

Hunter's treatment done for March

Mr. Growly  Guss

He HATES this part.

Catch !!!


I do have to APOLOGIES for not posting sooner. We both work full time and I try to HELP with our farm.(SORRY,HONEY) I need at least three more hours in the day and hope that will be enough!!! Hunter had his lumbar puncher this trip. We have Hunter accessed here in town. "THANK YOU HEATHER!!!!" For making Hunter smile,WE LUV YA!!!! When we got up to clinic chemo was not ready it should have been in by 9:00am but wasn't. Hunter appointment 8:00am at clinic and at 9:30am at RTU so down stairs we went. As we got Hunter registered for RTU the lady asked Hunter if he would like a teddy bear that someone had donated. Hunter Said yes !!! He named his bear Growly Guss bear,he loves him. He took his bear to RTU with him and told them all his name and showed them how he Growls. While we were waiting for Dr.Spraker to do his lumbar puncher Hunter was playing with them at RTU with an imaginary ball. THANK YOU ALL at the RTU for making Hunter smile !!!! On our trips I try to do something fun so he will remember all the fun he has had instead of the chemo and all that comes with it. Now back up stairs for more chemo. I always order Hunter a cupcake after RTU. As we got up stairs I try not to let Hunter venture out much. Our second week after Hunter was diagnosed he picked up a bug that is only in Hospital's in infusions so I am PETRIFIED to take him in back. But we survived !!!! Our favorite visitor came in to see us Oliver!!! (THANK YOU SHERRY!!!!) Now outside to see Daddy and Triston to make our wishes. Mom is still wishing for a cure !! We save the best part for last...... on our way home we picked up a new puppy. Her name is Snickers,and the boy's are so EXCITED !!!! Thank you for keeping us in your thoughts and prayers!!! Love, The Laub's

Sunday, February 20, 2011

Another treatment done !!!

THANK YOU SHERRY !!!! This means a lot to us !!!!

Hunter wishing mom hoping !!!

Triston wishing mom still hoping!!!

PEEK A BOO !!!!!

Dad would say "spur em get him going !!!!"

We are back from another treatment. This treatment was VERY  EMOTIONAL for me. Hunter is allergic to the tegaderm film they put over his port after he is access. He's constantly rubbing his port,even in his sleep. On this trip up to Primaries he was just to get Vincristine through his port. But this time was a lot different when they tried to flush his port to give him his chemo he started to cry. When they went to draw back no blood went into the syringe just bubbles. Hunter was crying so hard the sailing was just going into his tissue and the nurse told me it really hurts. This means Hunter will have to be DE-access and Re-access. Hunter itches his chest so much that he DE-access him self. The nurse had to take the tegaderm film off to DE-access him and his hole body was shaking because there was an extra tegaderm film on him covering more then his port. So it took longer to get this off. In St. George where he is access they put a extra tegaderm film on him because they didn't think it would stay on the way it was placed. Hunter hates to be accessed !!! But he knows it has to be done. He will hold my fingers and SQUEEZE TIGHT as I whisper to him in his ear telling him that his mommy is right hear by him. He had a visitor during all of this it was Oliver !!! THANK YOU  so very much Sherry for bring Oliver in to see Hunter. It truly help Hunter him !!! So while we were waiting for the lidocaine to numb his chest Hunter was playing with Oliver. Access and time for chemo. A short trip turn into a three and a half hour trip. But good news Hunter counts are up this means because he is doing well they are going to increase his chemo. (Mom is worried) So our brave little fighter made it through another treatment. After treatment we went out to the car to get daddy and Triston and took our boys to the fountain to make a wish. After we decided to take the boys to the living aquarium this time instead of  ice cream. THEY LOVED IT !!!! Hunter played peek a boo with the sting rays. But nether of the boys would not touch them they just played in the water.We want to thank you for keeping us in your thoughts and prayers !!! Love,the Laubs